Data Linkage
Linking clinical, biological, genomic and patient experience data to enable discoveries.
Cancer and other healthcare services are delivered in various locations and settings, with different funding arrangements and utilising inconsistent data which vary in type, quality and utility.
Data linkage allows us to bring these data sources together and build a more complete picture of how and where patients access care, how they’re being diagnosed and their quality of life after treatment.
It’s our goal to expand a data-rich discovery platform that will enable more rapid translation of the latest advances in cancer research through increasing the amount, quality and impact of data-driven, patient outcomes-focused research.
"By linking data that better reflects how patients experience care between different services, we can advocate for system-wide innovation and integration, reducing duplication of efforts and delivering care when and where it is needed most.”
- Prof Jon Emery, Primary Care Research and Education Lead
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Linking datasets enables better research
The VCCC Data-Driven Research Program is building upon infrastructure, linked data, and expertise of the alliance to create a research-ready data platform to drive the next generation of advances in cancer care.
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Diving into data
Historically, health data has been siloed in disparate systems; trapped by complexities in data governance that was preventing connection and comparison for research. A potential goldmine of information and data was languishing in primary health care records, hospital records and various cancer registries. Now, our Data-Driven Research Hub is changing all that.
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Linking primary care and hospital data
Connecting healthcare data from primary care and hospitals is essential to understanding the factors that contribute to delayed diagnosis and treatment - and affect patient outcomes and ongoing health issues.
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