A video series two years in the making has now been launched, created to strengthen knowledge, trust and access to cancer clinical trials for Aboriginal and Torres Strait Islander peoples.
Lotjpa Yapaneyepuk means Talk Together in Yorta Yorta language. The three videos, now available on the Lotjpa Yapaneyepuk YouTube channel are the outcome of a two-year co-design process grounded in yarning circles and community priorities. It celebrates Aboriginal voices and storytelling as a way of sharing knowledge, with community members speaking openly about cancer and what culturally safe care really means.
The video series includes an introduction to what a clinical trial is, presented in a culturally relevant context, emphasising family, culture and informed consent. The second video features a powerful story from a Wulli Wulli woman, sharing her lived experience of participating in a clinical trial. The final video is a resource for health professionals, highlighting the priorities of Aboriginal people living with cancer and the role of family and culture in care.
“This project is about talking together, listening deeply, and making sure our mob have the knowledge and confidence to decide what’s right for them,” says Leah Lindrea-Morrisson, Yorta Yorta woman and Aboriginal Research Officer on the project.
The launch event on Yorta Yorta Country marked the first public screening of the videos. Attendees included respected Aboriginal leaders and health advocates, clinicians and community members. Project participants were acknowledged and celebrated for their leadership and generosity in sharing their insights and experiences.
Following the launch, the videos will be shared widely with Aboriginal Community Controlled Health Organisations (ACCHOs), national and state cancer organisations, and health services across Australia.
Lotjpa Yapaneyepuk is one of seven initiatives delivered through the ReViTALISE Project, funded by the Australian Government through the Medical Research Future Fund (MRFF). The project is facilitated by the Regional Trials Network – Victoria, of which the VCCC Alliance is a proud partner.
